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Noticias
National Registry for Ichthyosis and Related Disorders | National Registry for Ichthyosis and Related Disorders |
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The National Registry for Ichthyosis and Related Disorders is seeking enrollment of all patients with inherited disorders of keratinization (except ichthyosis vulgaris).
Serum testing for X-linked recessive ichthyosis as well as molecular diagnosis of selected disorders is available without charge. We are eager to assist with research efforts, and welcome proposals. Information and enrollment forms can be downloaded from our website. Please contact us to enroll your affected patients or discuss research interests. Telephone: (800) 595-1265; e-mail: Esta dirección de correo electrónico está protegida contra los robots de spam, necesita tener Javascript activado para poder verla ; website: http://www.skinregistry.org |
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