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NATIONAL REGISTRY FOR ICHTHYOSIS |
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The National Registry for Ichthyosis and Related Disorders is
seeking enrollment of all patients with inherited disorders of keratinization (except ichthyosis vulgaris). Serum testing for
X-linked recessive ichthyosis as well as molecular diagnosis of
selected disorders is available without charge.
We are eager to
assist with research efforts, and welcome proposals. Information
and enrollment forms can be downloaded from our
website.
Please contact us to enroll your affected patients or
discuss research interests. Telephone: (800) 595-1265; e-mail:
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; website: www.skinregistry.org
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